Registro del grupo nadya-senpe de nutrición enteral domiciliaria en españa; años 2016 y 2017.
Por:
Wanden-Berghe Lozano C, Campos C, Burgos Peláez R, Álvarez J, Frias Soriano L, Matia Martín MP, Lobo-Támer G, de Luis Román DA, Gonzalo Marín M, Gómez Candela C, Martínez Olmos MA, Pintor Calleja B, Luengo Pérez LM, Santacruz N, Irles Rocamora JA, Higuera Pulgar I, Padín S, Leyes García P, Sánchez R, Cardona D, Martín MªÁ, Ballesta C, Suárez JP, Tejera C, Bonada A, Gardez C, Penacho MÁ, Martínez MJ, Virgili Casas MN, Martín T, Cánovas B, Díaz MI, Del Olmo D, Carabaña Pérez F, Parés Marimón RMª, Mauri Roca S, Romero V, García I, Sánchez-Vilar Burdiel O, García Y, Miserachs N, Tenorio Jiménez C, Apezetxea Celaya A, Pereira MA, Sánchez EA and Ponce González MÁ
Publicada:
7 mar 2019
Resumen:
Objective: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2016 and 2017. Material and methods: from January 1st 2016 to December 31st 2017, the HEN registry was recorded and afterwards a further descriptive and analytical analysis was done. Results: in 2016, 4,578 active patients were recorded and prevalence was 98.33 patients per one million inhabitants; in 2017, 4,777 patients were recorded, with a prevalence of 102.57 per one million inhabitants; 50.8% were males in 2016 and 50.5% in 2017. During the period 2016-17, median age was 71.5 years (IIQ 57-83), 1,558 HEN episodes were finished and the main cause was death (793 patients, 50.89%). Adult males were younger than females (65.3 vs. 73.3 years, p-value < 0.001). The most frequent diagnosis was the neurological disorder that presents with aphagia or severe dysphagia (59%). Nasogastric tube was the most frequent administration route (48.3%) and it is the most widely used in elderly patients (p < 0.001). One hundred and twenty-six pediatric patients were registered (57.1% females). Median age at the beginning of HEN in children was four months. "Other disorders" was the most recorded diagnostic group (41.3%), followed by the group of neurological disorder that presents with aphagia or severe dysphagia. Regarding children, 57.6% were fed through gastrostomy and the younger ones were fed through nasogastric tube (p-value 0.001). Conclusions: the number of patients in the registry, as well as the number of participating centers, is progressively increasing. The main characteristics of the patients have not changed. Despite the increase in diagnostic possibilities in the pediatric population, the classification within the group of "Other pathologies" is quite significant.
gold, Green Submitted
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