Home and Ambulatory Artificial Nutrition (NADYA) Group Report. Home parenteral nutrition in Spain, 2018
Por:
Wanden-Berghe, C, Compes, C, Jimenez, M, Cunill, J, Boluda, E, Candela, C, Casas, N, Pelaez, R, Roman, D, Lazaro, M, Martos, E, Faedo, C, Guardiola, P, Hernandez, J, Murillo, A, Martin, C, Paris, A, Fontalba, M, Lobo, G, Martin, P, Perez, F, Folgueras, T, Palmero, M, Perez, L, Burdiel, O, Costa, C, Perez, C, Ramirez, M, Delgado, Y, Gonzalez, M, Roca, S, Zafra, M, Diaz, M, Gabino, V, Baeza, B, Marin, M, Rocamora, J, Sanchez, R, Celaya, A, Ortiz, C, Llanos, J, de la Maza, B, Garcia, P, Martinez, M, Santaliestra, M and Grp NADYA-SENPE
Publicada:
1 mar 2020
Resumen:
Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018.
Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018.
Results: there were 278 patients from 45 Spanish hospitals (54.7 % women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was " palliative cancer" (22.0 %), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4 %). The first indication was short bowel syndrome in both children (60.9 %) and adults (35.7 %). The most frequently used type of catheter was tunneled in both children (81.0 %) and adults (41.1 %). Ending 75 episodes, the most frequent cause was death (52.0 %) and change to oral feeding (33.3 %).
Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.
Filiaciones:
:
Hosp Gen Univ Alicante, ISABIAL RSABIO, Alicante, Spain
Compes, C:
Hosp Gen Univ Gregorio Maranon, Madrid, Spain
Jimenez, M:
Hosp Univ 12 Octubre, Madrid, Spain
Cunill, J:
Hosp Univ Virgen Rocio, Seville, Spain
Boluda, E:
Hosp Univ La Paz, Dept Pediat, Madrid, Spain
Candela, C:
Hosp Univ La Paz, Madrid, Spain
Casas, N:
Hosp Univ Bellvitge, Barcelona, Spain
Pelaez, R:
Hosp Univ Vall Hebron, Barcelona, Spain
Roman, D:
Hosp Clin Univ Valladolid, Valladolid, Spain
Lazaro, M:
Hosp El Bierzo, Secc Endocrinol & Nutr, Leon, Spain
Martos, E:
Corp Sanitaria Parc Tauli, Barcelona, Spain
Faedo, C:
Hosp Univ Cent Asturias, Oviedo, Spain
Guardiola, P:
Hosp Univ Infanta Sofia, Madrid, Spain
Hernandez, J:
Hosp Univ Principe Asturias, Madrid, Spain
Murillo, A:
Hosp Virgen Camino, Pamplona, Spain
Martin, C:
Hosp Univ Virgen Macarena, Seville, Spain
Paris, A:
Hosp Univ Miguel Servet, Zaragoza, Spain
Fontalba, M:
Hosp Univ Virgen Victoria, Malaga, Spain
Lobo, G:
Hosp Univ Virgen Nieves, Granada, Spain
Martin, P:
Hosp Clin San Carlos, Madrid, Spain
Perez, F:
Hosp Ramon & Cajal, Madrid, Spain
Folgueras, T:
Complejo Hosp Univ Canarias, Santa Cruz De Tenerife, Spain
Palmero, M:
Hosp San Pedro Logrono, La Rioja, Spain
Perez, L:
Hosp Univ Infanta Cristina, Badajoz, Spain
Burdiel, O:
Hosp Univ Fdn Jimenez Diaz, Madrid, Spain
Costa, C:
Hosp Clin Univ, Valencia, Spain
Perez, C:
Complejo Hosp Univ Ferrol, La Coruna, Spain
Ramirez, M:
Complejo Hosp Jaen, Jaen, Spain
Delgado, Y:
Hosp Univ Insular Gran Canaria, Las Palmas Gran Canaria, Spain
Gonzalez, M:
Hosp Univ Gran Canaria Dr Negrin, Las Palmas Gran Canaria, Spain
Roca, S:
Hosp Univ Dr Josep Trueta, Girona, Spain
Zafra, M:
Hosp Clin Virgen Arrixaca, Murcia, Spain
Diaz, M:
Hosp Univ 12 Octubre, Dept Pediat, Madrid, Spain
Gabino, V:
Hosp San Pedro Alcantara, Caceres, Spain
Baeza, B:
Hosp Univ La Princesa, Madrid, Spain
Marin, M:
Hosp Univ Carlos Haya, Malaga, Spain
Rocamora, J:
Hosp Univ Ntra Sra Valme, Seville, Spain
Sanchez, R:
Hosp Cruces, Bilbao, Spain
Celaya, A:
Hosp Basurto, Bilbao, Spain
Ortiz, C:
Hosp Badalona Germans Trias & Pujol, Barcelona, Spain
Llanos, J:
Hosp Univ Nuestra Senora Candelaria, Santa Cruz De Tenerife, Spain
de la Maza, B:
Complejo Asistencial Leon, Leon, Spain
Garcia, P:
Hosp Clin Barcelona, Barcelona, Spain
Martinez, M:
Hosp Cent Def Gomez Ulla, Madrid, Spain
Santaliestra, M:
Hosp del Mar, Barcelona, Spain
Gold, Green Published
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