Regret and Therapeutic Decisions in Multiple Sclerosis Care: Literature Review and Research Protocol
Por:
Saposnik, G, Bueno-Gil, G, Sempere, A, Rodriguez-Antiguedad, A, del Rio, B, Baz, M, Terzaghi, M, Ballesteros, J and Maurino, J
Publicada:
21 jun 2021
Ahead of Print:
21 jun 2021
Resumen:
Background: Decisions based on erroneous assessments may result in unrealistic patient and family expectations, suboptimal advice, incorrect treatment, or costly medical errors. Regret is a common emotion in daily life that involves counterfactual thinking when considering alternative choices. Limited information is available on care-related regret affecting healthcare professionals managing patients with multiple sclerosis (MS). Methods: We reviewed identified gaps in the literature by searching for the combination of the following keywords in Pubmed: "regret and decision," "regret and physicians," and "regret and nurses." An expert panel of neurologists, a nurse, a psychiatrist, a pharmacist, and a psychometrics specialist participated in the study design. Care-related regret will be assessed by a behavioral battery including the standardized questionnaire Regret Intensity Scale (RIS-10) and 15 new specific items. Six items will evaluate regret in the most common social domains affecting individuals (financial, driving, sports-recreation, work, own health, and confidence in people). Another nine items will explore past and recent regret experiences in common situations experienced by healthcare professionals caring for patients with MS. We will also assess concomitant behavioral characteristics of healthcare professionals that could be associated with regret: coping strategies, life satisfaction, mood, positive social behaviors, occupational burnout, and tolerance to uncertainty. Planned Outcomes: This is the first comprehensive and standardized protocol to assess care-related regret and associated behavioral factors among healthcare professionals managing MS. These results will allow to understand and ameliorate regret in healthcare professionals. Spanish National Register (SL42129-20/598-E).
Filiaciones:
Saposnik, G:
Univ Zurich, Dept Econ, Lab Social & Neural Syst Res, Zurich, Switzerland
Univ Toronto, Li Ka Shing Inst, Clin Outcomes & Decis Neurosci Unit, Toronto, ON, Canada
Univ Toronto, St Michaels Hosp, Div Neurol, Dept Med, Toronto, ON, Canada
Bueno-Gil, G:
Roche Farma, Dept Med, Madrid, Spain
:
Hosp Gen Univ Alicante, Dept Neurol, Alicante, Spain
Rodriguez-Antiguedad, A:
Hosp Univ Cruces, Dept Neurol, Bilbao, Spain
del Rio, B:
Hosp Univ La Princesa, Dept Neurol, Madrid, Spain
Baz, M:
Hosp Univ Vall dHebron, Dept Psychiat, Barcelona, Spain
Terzaghi, M:
Univ Toronto, Li Ka Shing Inst, Clin Outcomes & Decis Neurosci Unit, Toronto, ON, Canada
Ballesteros, J:
Univ Basque Country UPV EHU, Dept Neurosci, Leioa, Spain
Univ Basque Country UPV EHU, CIBERSAM, Leioa, Spain
Maurino, J:
Roche Farma, Dept Med, Madrid, Spain
Green Published, gold
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